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Blood disorders (excluding cancers)·Noncommunicable diseases and mental health

Sickle cell disease

Gap: WHO/NICE no PNPKPrioritas 13 paket UHC · 39 actionNICE ✓PNPK ✗
PNPK · Indonesia

Pedoman Nasional yang relevan

Manual seed (pedoman lain)
  • Pedoman Pengelolaan Bank Darah Rumah Sakit (BDRS) (2008) Pedoman Desain Tipikal Mobil Donor Darah (2021) Pedoman Monitoring dan Evaluasi Pelaksanaan Program Kerja Sama Antara Puskesmas, Unit Transfusi Darah dan Rumah Sakit Dalam Pelayanan Darah (2019) Pedoman Surveilans Epidemiologi Penyakit Jantung dan Pembuluh Darah (2007)
NICE · UK Benchmark

Guideline NICE yang relevan

NICE guideline
  • CG143 Sickle cell disease: managing acute painful episodes in hospital (0.75)
  • QS58 Sickle cell disease (0.75)
  • NG164 COVID-19 rapid guideline: haematopoietic stem cell transplantation (0.38)
  • CG143 Sickle cell disease: managing acute painful episodes in hospital (0.50)
  • QS58 Sickle cell disease (0.50)
  • NG164 COVID-19 rapid guideline: haematopoietic stem cell transplantation (0.25)
UHC Compendium

Paket UHC dalam kategori ini (3)

Longitudinal management of sickle cell disease
WHO #186 · 13 action
Gap: WHO/NICE no PNPK

Genetic counselling for carriers of haemoglobin disorders | Condition-specific counselling and disease education | Chemoprophylaxis for sickle cell disease

Lihat 13 action detail
  • Genetic counselling for carriers of haemoglobin disorders
    Tasks: Conduct counselling
  • Condition-specific counselling and disease education
    Tasks: Conduct clinical assessment, Conduct counselling
  • Chemoprophylaxis for sickle cell disease
    Tasks: Prescribe oral medication
    Medicines: Hydroxycarbamide (hydroxyurea)
  • Vaccination: pneumococcal polysaccharide vaccine
    Tasks: Administer vaccine
    Medicines: Pneumococcal polysaccharide
  • Vaccination: meningococcal
    Tasks: Administer vaccine
    Medicines: Meningococcal meningitis vaccine
  • Condition-specific nutrition assessment and counselling
    Tasks: Conduct clinical assessment, Conduct counselling
  • Oral hydroxyurea for prevention of disease complication
    Tasks: Prescribe medication
    Medicines: Hydroxyurea, Hydroxycarbamide (hydroxyurea)
  • Blood and blood product transfusion
    Tasks: Prescribe blood and blood products, Administer blood and blood products with frequent monitoring
    Medicines: Red blood cells
  • Splenectomy
    Tasks: Provide pre-procedural medical care, Provide pre-procedural nursing care, Provide counselling and information and obtain consent, Prepare the patient and organize the equipment, Administer general anaesthesia, Conduct general surgery, Assist with general surgery, Provide nursing support for general surgery, Provide post-procedural care
  • Cerebral revascularization surgery
    Tasks: Provide counselling and information and obtain consent, Prepare the patient and organize the equipment, Administer general anaesthesia, Provide post-procedural care, Conduct interventional radiology procedure, Provide nursing support for interventional radiology procedure
  • Cholecystectomy
  • Total joint replacement
  • Core decompression of joints
Management of sickle cell crisis
WHO #187 · 11 action
Gap: WHO/NICE no PNPK

Incentive spirometry | Oral analgesics | Oral antimicrobials

Lihat 11 action detail
  • Incentive spirometry
    Tasks: Provide counselling and information and obtain consent, Document examination findings, Conduct therapeutic or preventative exercise therapy
  • Oral analgesics
    Tasks: Prescribe medication
    Medicines: Morphine
  • Oral antimicrobials
    Tasks: Prescribe medication
  • Intramuscular analgesics
    Tasks: Prescribe intramuscular medication, Administer intramuscular medication
    Medicines: Morphine
  • Intramuscular antimicrobials
    Tasks: Prescribe intramuscular medication, Administer intramuscular medication
    Medicines: Ceftriaxone
  • Supplemental oxygen
    Tasks: Prescribe oxygen, Administer oxygen
  • Intravenous analgesics
    Tasks: Prescribe intravenous medication, Administer intravenous medication
    Medicines: Morphine
  • Intravenous antimicrobials
    Tasks: Prescribe intravenous medication, Administer intravenous medication
    Medicines: Ceftriaxone
  • Intravenous fluids
    Tasks: Prescribe intravenous medication, Administer intravenous medication with frequent monitoring
    Medicines: Sodium chloride
  • Blood and blood product transfusion
    Tasks: Prescribe blood and blood products, Administer blood and blood products with frequent monitoring
    Medicines: Red blood cells
  • Exchange transfusion
    Tasks: Provide pre-procedural nursing care, Provide counselling and information and obtain consent, Prepare the patient and organize the equipment, Provide post-procedural care, Conduct haematological procedure, Assist with haematological procedure, Provide nursing support for haematological procedure
    Medicines: Coagulation factor IX complex
Screening and diagnosis of sickle cell disease
WHO #188 · 15 action
Gap: WHO/NICE no PNPK

Newborn screening for sickle cell disease | History and physical examination | Point of care testing

Lihat 15 action detail
  • Newborn screening for sickle cell disease
    Tasks: Conduct screening
  • History and physical examination
    Tasks: Conduct vital signs measurement, Conduct history taking, Conduct physical examination, Provide clinical advice
  • Point of care testing
    Tasks: Provide counselling and information and obtain consent, Conduct diagnostic testing
  • Basic laboratory tests
    Tasks: Provide counselling and information and obtain consent, Conduct diagnostic testing, Document examination findings
  • Advanced laboratory tests
    Tasks: Provide counselling and information and obtain consent, Conduct diagnostic testing, Document examination findings
  • X-ray
    Tasks: Provide counselling and information and obtain consent, Document examination findings, Conduct radiological examination
  • Ultrasound
    Tasks: Provide counselling and information and obtain consent, Document examination findings, Conduct radiological examination
  • Transcranial doppler ultrasound
    Tasks: Provide counselling and information and obtain consent, Document examination findings, Conduct radiological examination
  • Echocardiogram
    Tasks: Provide counselling and information and obtain consent, Conduct diagnostic testing, Document examination findings
  • Computed tomography (CT) scan
    Tasks: Provide counselling and information and obtain consent, Document examination findings, Conduct radiological examination
  • Magnetic resonance imaging (MRI)
    Tasks: Provide counselling and information and obtain consent, Document examination findings, Conduct radiological examination
  • Bone scan
    Tasks: Provide counselling and information and obtain consent, Document examination findings, Conduct radiological examination
  • Electrocardiogram (ECG)
    Tasks: Provide counselling and information and obtain consent, Conduct diagnostic testing, Document examination findings
  • Pulse oximetry
    Tasks: Conduct vital signs measurement
  • Pulmonary function test
    Tasks: Provide counselling and information and obtain consent, Conduct diagnostic testing, Document examination findings